Publications: National Clinical Programme for Rare Diseases

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Rare Disease Information Website

Published: 16 June, 2017
Category: Reviews and Reports
Topic: Rare Diseases
Author: National Clinical Programme for Rare Diseases

Read information of the National Clinical Programme for Rare Diseases on the National Rare Disease office

Draft Model of Care for Transition in Rare Diseases

Published: 1 December, 2016
Category: Model of care
Topic: Rare Diseases
Author: National Clinical Programme for Rare Diseases

Read the report of the National Clinical Programme for Rare Diseases on the draft model of care for transition in Rare Diseases

Feedback Form for Draft Model of Care for Transition in Rare Diseases

Published: 1 December, 2016
Category: Model of care
Topic: Rare Diseases
Author: National Clinical Programme for Rare Diseases

Download the feedback form of the National Clinical Programme for Rare Diseases for the Draft Model of Care for Transition in Rare Diseases

Pigmented Lesion GP Referral Form

Published: 1 March, 2015
Category: Referral Form
Topic: Rare Diseases
Author: National Clinical Programme for Rare Diseases

Download the referral form of the National Clinical Programme for Dermatology on Pigmented Lesion